Please use this identifier to cite or link to this item: https://hdl.handle.net/20.500.11851/3262
Full metadata record
DC FieldValueLanguage
dc.contributor.authorEkmekci, Perihan Elif-
dc.contributor.authorGüner, Müberra Devrim-
dc.date.accessioned2019-12-30T07:28:21Z
dc.date.available2019-12-30T07:28:21Z
dc.date.issued2019
dc.identifier.citationEkmekci, P. E., & Güner, M. D. (2019). Do fair and just systems require compensation for the disadvantages of the natural lottery? a discussion on society's duties on the provision of gene therapy. Balkan journal of medical genetics: BJMG, 22(1), 69.en_US
dc.identifier.issn1311-0160
dc.identifier.other6
dc.identifier.urihttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC6714335/-
dc.identifier.urihttps://hdl.handle.net/20.500.11851/3262-
dc.description.abstractGenetic diseases have been thought to be acquired as a result of sheer bad luck. However, recent advances in medical science have demonstrated the mechanisms of genetic disorders, which enable us to intervene with their occurrence and treatment. Today, gene therapy, once considered too risky, has become safer and can save the lives of patients with previously untreatable and lethal genetic diseases. However, the positive expectations from gene therapy are overshadowed by their extremely high prices. Thus, the duty of society in the provision of gene therapies has been frequently discussed. The discussions mainly focus on how to meet the genetic treatment needs of patients without violating the notion of justice and fairness in society. This study discusses the theoretical grounds for society's duty to compensate for genetic disease patients' disadvantages by providing them with appropriate genetic treatment. The main question is whether a fair and just system requires society to provide available lifesaving gene therapy to patients in need. The discussion is constructed on the crucial notion of the fair equal opportunity principle in a just system and the plausibility of including disadvantages emerging from bad luck in the natural lottery in the domain of justice.en_US
dc.language.isoenen_US
dc.publisherMACEDONIAN ACAD SCIENCES ARTSen_US
dc.relation.ispartofBALKAN JOURNAL OF MEDICAL GENETICSen_US
dc.rightsinfo:eu-repo/semantics/openAccessen_US
dc.subjectCapability approachen_US
dc.subjectDistributive justiceen_US
dc.subjectEthicsen_US
dc.subjectGene therapyen_US
dc.subjectRare diseaseen_US
dc.titleDo fair and just systems require compensation for the disadvantages of the natural lottery? A discussion on society’s duties on the provision of gene therapyen_US
dc.typeArticleen_US
dc.departmentFaculties, School of Medicine, Department of Internal Medical Sciencesen_US
dc.departmentFaculties, School of Medicine, Department of Basic Medical Sciencesen_US
dc.departmentFakülteler, Tıp Fakültesi, Dahili Tıp Bilimleri Bölümütr_TR
dc.departmentFakülteler, Tıp Fakültesi, Temel Tıp Bilimleri Bölümütr_TR
dc.identifier.volume22
dc.identifier.issue1
dc.identifier.startpage69
dc.identifier.endpage74
dc.identifier.wosWOS:000483955200010en_US
dc.identifier.scopus2-s2.0-85072063557en_US
dc.institutionauthorEkmekci, Perihan Elif-
dc.institutionauthorGüner, Müberra Devrim-
dc.identifier.pmid31523623en_US
dc.identifier.doi10.2478/bjmg-2019-0008-
dc.authorwosidO-7742-2016-
dc.authorwosidQ-1305-2015-
dc.relation.publicationcategoryMakale - Uluslararası Hakemli Dergi - Kurum Öğretim Elemanıen_US
dc.identifier.scopusqualityQ4-
item.openairecristypehttp://purl.org/coar/resource_type/c_18cf-
item.grantfulltextnone-
item.fulltextNo Fulltext-
item.openairetypeArticle-
item.cerifentitytypePublications-
item.languageiso639-1en-
crisitem.author.dept03.14. Department of Internal Medicine-
crisitem.author.dept03.14. Department of Internal Medicine-
Appears in Collections:Dahili Tıp Bilimleri Bölümü / Department of Internal Medical Sciences
PubMed İndeksli Yayınlar Koleksiyonu / PubMed Indexed Publications Collection
Scopus İndeksli Yayınlar Koleksiyonu / Scopus Indexed Publications Collection
Temel Tıp Bilimleri Bölümü / Department of Basic Medical Sciences
WoS İndeksli Yayınlar Koleksiyonu / WoS Indexed Publications Collection
Show simple item record



CORE Recommender

Page view(s)

272
checked on Mar 25, 2024

Google ScholarTM

Check




Altmetric


Items in GCRIS Repository are protected by copyright, with all rights reserved, unless otherwise indicated.